I couldn’t track down that particular talk, but I immediately recognized the truth, the reframe I’ve spent decades doing in my head. I am not my disease. But I am profoundly different because of it. Opened, even. To frustration and vulnerability. To abuse and mischaracterization. To kindness and concern.
Her letter opened me. I never expected to receive it. I never expected to write. I never expected anyone to be changed by something that I said. I never expected to be this open. At first I thought of myself as gutted.
Then different. But now I’m claiming open. I’m open. And that’s not always an easy thing. But here’s what that open has yielded: authentic friendships and satisfying work, a stream of interesting encounters with strangers, a parade of teachers who have shaken and shaped me.
And now this openness has led me to another realization perfect for the season. I have returned the favor granted to me by my teachers. I, too, have had a positive impact. It didn’t come from cloistering myself and reading great books, though I don’t knock that strategy. It didn’t spring from a traditional classroom. It came from a profound shift in how I present myself to the world. On wheels, yes, but fully present. Alert to what I see around me. Like many gifts, it was born out of pain. I was the kid who struggled. I was the kid least likely to succeed as a student. I’m not sure that this blog can be called success, but when I read responses, it feels nothing short of miraculous. That I got here. That I could try to explain. That readers would not only listen but feel changed.
And that’s the miracle, the blessing, that a learning-disabled, hyper-kinetic kid could transform into a wheelchair-riding man with something to say.
I love this blog, Randy, and I wish that I was close enough to you and Leslie that our meetings could happen more often.
Knocked another one out of the park, man. Nice.
Your blog “a success”? Yes, yes. Your words take me away to live for a time in Randy’s world, a welcome escape from my home-bound MS life. Your blog is a gift that encourages me to “keep on keeping on”.